News & Blogs

Learn about Lyme disease patient experiences and what’s going on with the Generation Lyme community.

Archive

Generation Lyme Day

A new holiday to celebrate the people of the Lyme community

by Jennifer Hoffmann

There was no holiday to celebrate the people of the Lyme disease community. So we created one.

On Saturday, August 21, 2021, our community will come together to honor everyone whose lives are impacted by Lyme disease. We will celebrate each other for who we are, far beyond our illness, and give recognition to wherever we are in our journeys. It will be an all-day virtual event with guests and community representation from across the country, facilitated by our four-person Generation Lyme team: Jesse, Brooke, Haley, and Jennifer.

The Helmsley Building Turned Green and Brought Light To The World

Lyme disease Awareness Month is a time for positive change

Progress moves slowly but, this past Saturday, we took a leap forward. For the first time, the Helmsley Building in New York City lit up bright green for Lyme Awareness Month.

This meant so much to a whole lot of people. Lyme disease patients are used to being dismissed, unheard, and underrepresented. This May, the world got a huge reminder that people need help and that change is coming.

Overlooked and Under-diagnosed: Stories of Long-Haul Lyme Disease

by Jennifer Hoffmann, Noah Johnston, and Brooke Stoddard

This past summer, WNBA star Elena Delle Donne shared her twelve-year battle with Lyme disease. Elena’s story received national attention, mirroring the experiences of Lyme disease patients across the country. But the headline quickly vanished.

That’s why Project Lyme and Generation Lyme are taking it upon ourselves to spread the word about Lyme disease and express the urgency Lyme disease patients experience in their pursuit of help. Like Elena, Lyme patients often face numerous hurdles: debilitating symptoms, difficulty in receiving a diagnosis, and a complex set of treatment options.

Generation Lyme

by Brooke Stoddard

Generation Lyme community members are just like you. They live in every part of the country, from big city to small town. Some are students, some are working full-time, some are working part-time, and some are not working at all as they focus on their health. They have talked to LLMDs, read research dedicated to Lyme disease, and explored traditional, western medicine, and natural, holistic treatments and lifestyle adjustments in an effort to get better. No matter where you are in your personal journey with Lyme disease, Generation Lyme is here to cheer for you.