Lyme Patient Stories
We’re empowering people facing Lyme disease—one story at a time.
Lyme disease impacts people of all ages, genders, and backgrounds. We share Lyme stories on our social platforms to help people connect, heal, and show the world what it’s like to live with Lyme.
Are you thinking about sharing your story?
We know how helpful and healing it can be to tell your story when you're ready and supported. There's no right or wrong way to do so--and never any pressure.
To see what the process is like, visit the link below!
If you have any questions about sharing your story, email us anytime.
Check out this message from Meet-Up host & community member Alex about sharing stories!
Click on the pictures below from our Instagram to read each story.
By sharing the human realities of this invisible epidemic, we help bring attention to a problem that needs to be solved, offer recognition and hope to those going through it right now, and help connect people with others who have shared similar experiences and can offer support.
Julie-ann
"I am a 33-year-old Lyme warrior living in the beautiful state of Maine. In 2017, I was diagnosed with Lyme, Borrelia miyamotoi, Babesia, Bartonella, C. pneumoniae, POTS, MCAS, and mold illness. Prior to this, I’d struggled with my health for over 15 years and saw countless doctors who dismissed my illness as “just anxiety”, depression, fibromyalgia, and chronic migraines. It took a full year of a very rapid health decline to finally get answers, and even then it was only because I advocated for myself and requested the proper testing. Looking back, I now remember pulling a tick off myself prior to my decline. The functional medicine doctor I was seeing insisted all my symptoms were due to candida overgrowth and blamed my MS-type symptoms on anxiety.”
Ashley
"I first noticed a decline in my health my junior year of college. I remember the slew of odd symptoms that seemed to appear overnight. My first symptoms were pigment loss, extreme fatigue, muscle burning and drenching night sweats. I knew something was wrong but I continued to push through to graduate even though my health continued to decline. After college I had obtained my first manager role as a nutrition manager. Everything seemed to be manageable until one day I woke up for work and couldn't move my legs."
John
“I was diagnosed with Lyme disease roughly 3 years ago, after a seizure my sophomore year of undergrad. After my seizure, my main symptoms were neurological. I had awful insomnia, brain fog and anxiety. I was immediately prescribed minocycline and a variety of antidepressants to help me sleep.
My life did a complete 180. I began seeking out different alternative medical practitioners and was consuming all the information on Lyme disease, biology, physiology, biohacking, and holistic health that I could find. I felt awful, and I was determined to not feel that way anymore. However, I was terrified it was a lost cause.”
Hear from our community about the impact
of story sharing.
To see full list of instructions, tap the link below:
The Generation Lyme Podcast
Check out this episode of The Generation Lyme Podcast for an in-depth conversation about why Lyme stories matter: how they impact our lives, help us heal & connect, and change the world.
Thinking of sharing your story?