Lyme Disease Awareness
Generation Lyme raises awareness of Lyme and other tick-borne diseases by sharing accurate information and amplifying the experiences of people living with them.
Our community’s voices help people understand the complex ways Lyme disease can affect physical and mental health, relationships, work, education, identity, and everyday life. By sharing these experiences, we challenge misconceptions, raise awareness, and help drive much-needed change for people worldwide.
In Your Own Words
Our community's words can make some of the most powerful statements about the realities of living with Lyme disease.
Every May, during Lyme Disease Awareness Month, Generation Lyme makes an extra effort to help the wider world understand what it's like to live with Lyme disease. Through our “In Your Own Words” campaign, we amplify community voices, share educational information, and create opportunities for people affected by Lyme to be seen, heard, and understood. But Lyme disease awareness matters all year long.
Scroll through the images below to hear from the Generation Lyme community and understand what it’s like to experience Lyme disease.
Tap to expand images.
Hope. In your own words.
To our community: Thank you for participating in our Lyme Disease Awareness Month campaigns. You help show the world what it's like to live with Lyme disease and affirm that no one in this community is alone.
It's valid not to feel strong on a given day (or at all). But you are, even if you don't feel it. Know that wherever you are in your journey, Gen Lyme supports you.
Lyme Facts
Understanding the facts can help people better understand our experiences.
Generation Lyme shares evidence-based information about Lyme and other tick-borne diseases alongside the perspectives of people affected by them. Together, facts and lived experience can provide a fuller picture of the impact of these illnesses.
Shine A Light On Lyme
This campaign began through a partnership with Project Lyme to raise awareness about tick-borne diseases by lighting landmarks green during Lyme Disease Awareness Month. Over time, it expanded to bring hope and recognition to people everywhere.
Read about the first lighting of the Helmsley Building in NYC for World Lyme Day in 2021→
You don’t have to navigate Lyme alone
Generation Lyme offers free, virtual, patient-led community support spaces where patients, caregivers, and loved ones can connect with people who understand.