Our Impact

Generation Lyme is a nonprofit organization that works to create safe spaces for Lyme patients and loved ones to find community, support, and belonging. Here, people impacted by tick-borne disease can know they’re not alone, find resources, and have things to look forward to—which can make all the difference.

1,000+

meet-ups since 2020

Generation Lyme has hosted over 700 Meet-Ups for people across the globe, giving tick-borne disease patients and loved ones a chance to connect.

10,000+

participants

Our volunteer-hosted Meet-Ups have served over 9,000 participants worldwide, helping and connecting people according to their specific needs.

150+

stories shared

We have shared over 150 firsthand patient stories, helping people connect with others who have gone through similar experiences.

organizational growth

Gen Lyme began as an initiative of Project Lyme. In 2023, Generation Lyme became an independent 501(c)3 nonprofit organization incorporated in New York State.

new holiday

We are committed to giving our community more than just a support group, but also something to look forward to—and a place to have fun. In 2021, we founded Generation Lyme Day: a new holiday to celebrate the people of the Lyme community.

the generation Lyme podcast

The Generation Lyme Podcast shares information and insights through personal stories to help people better understand and manage Lyme disease and other chronic illness experiences. On Spotify, the Gen Lyme Pod is ranked in the top 20% of most shared globally and the top 25% of most followed podcasts.

lighting new york city green for Lyme disease awareness

In 2021 and 2022, Generation Lyme partnered with Project Lyme to light the Helmsley Building in New York City green for World Lyme Day (May 1st), beginning a campaign to raise awareness about tick-borne diseases by lighting landmarks green during Lyme Disease Awareness Month, bringing recognition and hope to people everywhere.

team expansion

Over the years, our Gen Lyme Team has grown to include over 20 volunteers from across the United States and Canada. If you are interested in working with us, visit our volunteer page.

meet-ups

Since 2020, we have expanded our Meet-Up offerings to include calls for Parents, Partners, Supporters, Late-Nighters, International participants, Men, Women, college students, and the BIPOC and LGBTQIA+ communities.

Supporters resources

In 2020 and 2021, we started Meet-Ups for Parents and Supporters. In 2022, we added a Supporters Blog, a Love Languages series, and a new online resource with tips on how to care for loved ones with Lyme.

Lyme disease awareness projects

Generation Lyme has leveraged its community platform and unique perspective to contribute grassroots awareness projects to Lyme Disease Awareness Month every May and a public comment campaign to the US Department of Health and Human Service’s Tick-Borne Disease Working Group.

2023 Wrapped

Generation Lyme is growing to meet a global need for community support for tick-borne disease. View this report to view a list of our accomplishments in 2023.