The Generation Lyme Podcast
An Episode To Advocate For (& Comfort) Our Community - Ep 11
If you were upset by the recent Daily Mail article about Spoonies on TikTok (no, we won't bother linking the article in question), check out this episode for some relief. Sometimes, there's nothing better than a good (and productive!) roast with friends.
If you have a chronic and/or invisible illness or disability, whether or not you choose to share your experience online: We believe you. You're not alone.
While we believe the Daily Mail article isn’t worth anyone’s time or spoons, we know pieces like it can have real-world implications that hurt people in our community—particularly young people. That’s why we take the time to speak out, adding our voices and platform to speak truth and reason in place of misinformation about chronic/invisible illness and disability.
So if you need some help communicating where this article goes wrong, definitely check out this episode.
This episode features Grace Shults, Jennifer Hoffmann, and Jesse Ruben from Generation Lyme. You can stream the audio version of The Generation Lyme Podcast on Spotify, Apple Podcasts, and all of your other favorite platforms! We love all of our subscribers! So remember to like, leave a review, and subscribe to the Generation Lyme Podcast everywhere!
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Links:
More:
Westergaard D, Moseley P, Sørup FKH, Baldi P, Brunak S. Population-wide analysis of differences in disease progression patterns in men and women. Nat Commun. 2019
Elsa-Grace Giardina, MD, professor of medicine and founder, Center for Women’s Health, Columbia University Medical Center, New York City.
Nancy Lee, MD, member, board of directors, National Black Women’s Health Imperative.
European Heart Journal: Acute Cardiovascular Care. August 2016.
Diagnosis. June 2014.
Neurology. October 2016.
Frontiers in Neuroendocrinology. August 2014.
American Autoimmune Related Diseases Association: “Women and Autoimmunity”
Academic Emergency Medicine. May 2008.
Journal of Law, Medicine & Ethics. 2001.
Circulation. February 2018.
BMC Women’s Health. October 2015.
CDC: Pregnancy Mortality Surveillance System.
New York City Department of Health and Mental Hygiene: “Severe Maternal Morbidity in New York City, 2008–2012.”
National Public Radio, Robert Wood Johnson Foundation, and Harvard TH Chan School of Public Health: “Discrimination in America: Experiences and Views of African Americans.”